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Together We Can Make A Difference
For Those Affected By Sarcomas!

Group Locator

Click on a country on the map to show the complete List of all groups in this country:

Puerto Rico

Poland

2 Patient groups in Poland:

SPAEN Member Groups:

  • Stow. Pomocy Chorym Na GIST
  • Stow. Pomocy Chorym Na Miesaki "SARCOMA"

Pakistan

Philippines

Papua New Guinea

Peru

Panama

Oman

New Zealand

Nepal

Norway

Netherlands

3 Patientsgroups in the Netherlands:

SPAEN Member Groups:

  • Contactgroep GIST Nederland - België
  • Stichting Sarcoma Nederland
  • Chordoma Foundation Europe

Nicaragua

Nigeria

Niger

New Caledonia

Namibia

Mozambique

Malaysia

Mexico

Malawi

Mauritania

Mongolia

Myanmar

Mali

Macedonia

1 Patient Group in Macedonia:

SPAEN Member Groups:

  • Patient Advocates from Macedonia

Madagascar

Montenegro

Moldova

Morocco

Libya

Latvia

Luxembourg

Lithuania

Lesotho

Liberia

Sri Lanka

Lebanon

Laos

Kazakhstan

Kuwait

South Korea

North Korea

Cambodia

Kyrgyzstan

Kenya

Japan

Jordan

Jamaica

Italy

11 Patient Groups in Italy:

SPAEN Member Groups:

  • A.I.G. Associazione Italina
  • GIST Associazione Paola per i Tumori Muscoloscheletrici.
  • Onlus Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva

Other Patient Groups:

  • ASSOCIAZIONE "ALDO ARIENTI AMICI C.O.O - ONLUS" 
  • Associazione Aurora Tomaselli
  • Associazione ONLUS: Il pensatore Matteo Amitrano Associazione Paola: Per i tumori muscolo scheletrici ONLUS LAM Italia ONLUS
  • Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
  • Noi per Voi per il Meyer Onlus
  • Associazione di Genitori, contro le leucemie e i tumori infantili
  • RUKIJE un raggio di sole - Associazione pazienti oncologici dell'aparato muscolo-scheletrico
  • Soft Tissue Sarcoma People's Organization

Iceland

Iran

Iraq

India

Israel

1 Patient Group in Israel:

Patient Advocacy Group:

  • Israeli GIST Patients Organisation

Ireland

Indonesia

Hungary

Haiti

Croatia

Honduras

Guyana

Guinea Bissau

Guatemala

Greece

Equatorial Guinea

Guinea

Gambia

Greenland

Ghana

Georgia

United Kingdom

3 Patients Groups in the United Kingdom:

SPAEN Member Groups:

  • Sarcoma UK
  • GIST Support UK
  • Guy Francis Bone Cancer Research Fund

Gabon

France

3 Patient Groups in France:

SPAEN Member Groups:

  • A.F.P.G. Ensemble contre le GIST
  • Info Sarcomes
  • SOS Desmoide

Falkland Islands

Fiji

Finland

1 Patient Group in Finland:

SPAEN Member Groups:

  • Finnish GIST Patient Network

Ethiopia

Spain

Eritrea

Egypt

Estonia

Ecuador

Algeria

Dominican Republic

Denmark

Djibouti

Germany

3 Patients Groups in Germany:

SPAEN Member Groups:

  • Das Lebenshaus e.V. GIST
  • Das Lebenshaus e.V. Sarkome
  • SOS Desmoide

Czech Republic

Cyprus

Cuba

Costa Rica

Colombia

China

Cameroon

Chile

Ivory Coast

Switzerland

1 Patient Group in Switzerland:

SPAEN Member Groups:

  • GIST-Gruppe Schweiz

Republic of the Congo

Central African Republic

Democratic Republic of the Congo

Canada

Belize

Belarus

Botswana

Bhutan

The Bahamas

Brazil

Bolivia

Brunei

Benin

Burundi

Bulgaria

1 Patient Group in Bulgaria:

Patient Advocacy Group:

  • GIST Alliance for Patients Bulgaria

Burkina Faso

Belgium

1 Patient Group in Belgium:

Patient Advocacy Group:

  • Contactgroep GIST Nederland - België

Bangladesh

Bosnia and Herzegovina

Azerbaijan

Australia

3 Patient Advocacy Groups in Australia:

  • Erik Hausoul Sarcoma Foundation
  • Hannas Chance Sarcoma Foundation
  • Sarah Grace Sarcoma Foundation

Austria

Argentina

Angola

Armenia

Albania

Afghanistan

United Arab Emirates

West Bank

Portugal

Paraguay

Qatar

Romania

1 Patient group in Romania:

SPAEN Member Group:

  • Romanian GIST-Network

Republic of Serbia

Russia

Rwanda

Saudi Arabia

Solomon Islands

Sudan

Sweden

1 Patient Group in Sweden:

SPAEN Member Groups:

Slovenia

Slovakia

Sierra Leone

Senegal

Somalia

Suriname

South Sudan

El Salvador

Syria

Swaziland

Chad

French Southern and Antarctic Lands

Togo

Thailand

Tajikistan

East Timor

Turkmenistan

Tunisia

Turkey

1 Patient Group in Turkey:

SPAEN Member Groups:

  • Genç Birikim Derneği & Youth Accumulation Association (Associate Member)

Trinidad and Tobago

Taiwan

Tanzania

Ukraine

Uganda

United States of America

10 Patient Groups in the United States:

  • Beat Sarcoma
  • GIST Support International (GSI)
  • Global GIST Network
  • Life Raft Group
  • National Leiomyosarcoma Foundation
  • Sarcoma Alliance
  • Sarcoma Foundation of America
  • The Desmoid Tumour Research Foundation
  • The Liddy Shriver Sarcoma Initiative
  • The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)

Uruguay

Uzbekistan

Venezuela

Vietnam

Vanuatu

Yemen

South Africa

Zambia

Zimbabwe

Northern Cyprus

Kosovo

Western Sahara

Western Sahara

French Guiana

This is a worldwide map of Sarcoma patient groups (incl. SPAEN member organisations). Please move your mouse over the countries to see listed patient groups and then click to see more details.

Please click to take a look at all International Patient Groups (incl. SPAEN Members)

If you know a group which is not listed here, or if details have changed, please get in touch with us using "Contact Us".