The Sarcoma 101 Training Course
SPAEN is planning an intensive 24 hour introductory course to Soft Tissue Sarcomas & Bone Sarcomas (27/28 October 2017 in Frankfurt/Main, Germany).
SPAEN is currently evaluating the interest among its members and it will be decided at the beginning of July 2017 depending on the number of interested delegates if the Training Course will take place or not.
All course members will have improved their understanding of the diagnostic and treatment pathways faced by sarcoma patients and will have developed their ability to respond to questions from patients about sarcoma and their individual treatment pathways.
• Patient Group Representatives / Patient Advocates (also GIST-Reps. - who want to learn more about Sarcomas)
• Young doctors or nurses – who are newly interested in Sarcomas
• Representatives of pharma companies, medical societies, networks – who are newly interested in Sarcomas
SmartStart is a unique, three-day patient advocates’ educational course during which those who are relatively new to cancer patient support and advocacy will have the opportunity to learn knowledge and tools which will provide the solid foundations for them to create and maintain a national not-for-profit advocacy/support organisation in their own country.
- the right knowledge to set up a national cancer patient advocacy and/or support group in Europe
- experienced patient group leaders and other knowledgeable trainers who will share their experiences and best practices with the participants
- a time-tested, balanced mix of practical advocacy and support “tools” for patient advocates.
The Training Course is organised by Das Wissenshaus GmbH Institute of Oncology on behalf of different intl. Cancer Umbrella Organisations such as CML-Advocates, Europa Uomo, ELPA, IBTA, IKCC, MPNE and SPAEN.
ESO Masterclass in Patient Advocacy: Working Torwards Stronger and more Effective Advocacy in Europe
The European School of Oncology (ESO) has decided to organise this course because of the limited opportunities available for highly experienced cancer patient advocacy leaders to enhance their understanding of key cancer policy issues and develop their advocacy skills. A small steering committee consisting of advocacy leaders representing a number of European cancer patient organisations developed a programme that we think will be both interesting and of value to participants.
The last ESO Masterclasses took place in June 2014 and June 2016 in Milan.
EORTC “Understanding Cancer Clinical Research”
Patients and their representatives offer a unique perspective of experiential knowledge acquired by dealing with their condition on a daily basis. They can help create more efficient trials, address issues expressed by those living with the condition, and help solve operational issues and ones that affect recruitment and compliance. Considering these elements in the early stages of trial design saves time and money in the long run. Patient organisations can play a key role.
The close cooperation between Patient Organisations, Medical Experts and Industry are one of the key elements of future Cancer Clinical Research. There is a high need for earlier and better patient involvement in clinical research to achieve effective cancer treatments more quickly. Patient involvement in cancer clinical research means research done with or by patients rather than doing research for, to, or about them.
The first two-day-training course ( pdf course programme (2.36 MB>)> ) took place in February 2014 in Brussels.